chd stem cell research; stephanie romer; adult congenital heart association, acha, project heart, hlhs, hrhs, fontan, single ventricle, chd

Shout out to those who may feel they do nothing when in reality having an illness is a FULL TIME JOB...

Fear keeps you stuck, immobile, numb, and in a perpetual cycle of procrastination and doubt. As a result, we can get stuck in Apathy or...

Surviving trauma is the first step. When you escape the person(s), environment, and/or the illness that has been haunting you and find....

"A man who received a transplanted heart that was kept 'alive' for five hours said he feels like he has been given "a whole..."

HLHS baby is given Baboon Heart...

Travel Tips for CHD Adult and other illnesses who have to be creative to take the best care of their bodies...

Why it's important to speak up at appointments...

“Access represents freedom...”

Remember all of the patients fighting for their lives, undergoing surgeries and traumatic medical experiences...

I was on a mission to save children and disabled individuals who could not speak for themselves by teaching families, patients, doctors...

Never assume your child, teen, or adult loved one is faking or being dramatic. They are struggling in ways you may never understand...

DEAR CHD, If you were face to face...

One of the Oldest HLHS Survivors turns 34 years old...

"They brightened the days of families who had children facing congenital heart defects..."

How do you think you can truly achieve living in peace no matter what is going on around you? Do you find yourself saying things like...