Taste of Freedom: Modeling with a Disability
As for modeling, even though I constantly struggled with my insecurities being so different from the other girls, I didn’t quit because...
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New Year - No Goals!
New Years Goals include no pressure! Some of that includes losing expectations and letting myself to make mistakes like every other human...
Disability Housing Crisis
Disability Housing: Stephanie Romer writes about a difficult issues living with an invisible disability. Travis Flores disability...
CHD Babies & Brain Development
Babies born with Congenital Heart Defects or Disease often have developmental challenges...
Trump & The Affordable Care Act
Trump & The Affordable Care Act...
Mental Health & Disabilities
"Not once was I offered mental health services. Not once was the emotional toll of my experiences addressed or acknowledged."
CHD is NOT a Childhood Illness
CHD is NOT a Childhood Illness
Stephanie's Story: HLHS, 31
The word determined doesn’t even explain it. I was on a mission to make my body indestructible...
Advocate's Voice
I am a CHD Advocate and my voice counts...
Suicidal Feelings, Not Wanting to Die
To The Person Who Feels Suicidal But Doesn't Want To Die
You Are Not Obligated to be Healthy
You are not obligated...
Executive Functioning & CHD Brain
Adults with CHD are at a higher risk for Executive Functioning difficulties...
Quick Laugh: CHD Toddler Defends Herself
This little girl is literally a CHD Fighter. An adorable CHD girl puts little boy in a headlock...
Doctors with Disabilities
Must read! "Doctors are often portrayed as pinnacles of health, superhumans..."
Complex CHD Adults Making History
Complex CHD Adults living for the first time...creating history...
Stem Cells & CHD Babies
chd stem cell research; stephanie romer; adult congenital heart association, acha, project heart, hlhs, hrhs, fontan, single ventricle, chd
Shout Out to YOU: Being sick is a Full Time Job!
Shout out to those who may feel they do nothing when in reality having an illness is a FULL TIME JOB...
Heart in a Box Transplant
"A man who received a transplanted heart that was kept 'alive' for five hours said he feels like he has been given "a whole..."
HLHS & Baboon Heart
HLHS baby is given Baboon Heart...
Travel Tips
Travel Tips for CHD Adult and other illnesses who have to be creative to take the best care of their bodies...
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